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HIV / AIDS MINISTRIES NETWORK

FOCUS PAPER # 32          --         November 1997

A NETWORK OF UNITED METHODISTS AND OTHERS WHO CARE ABOUT THE GLOBAL HIV/AIDS PANDEMIC AND THOSE WHOSE LIVES HAVE BEEN TOUCHED


Children Living in a World with AIDS

Contents

Resources Adapted from UNAIDS Materials

World AIDS Day

Additional Resources (Religious)


Los niņos en los tiempos del SIDA




Dear Network Members:

Children Living in a World with AIDS is the theme for World AIDS Day December 1, 1997. Along with others throughout the world, United Methodists observe World AIDS Day ("World AIDS Day Observance," a resolution adopted by the 1996 General Conference)

The emphasis in 1997 is on every human being under the age of 18 years, in line with the definition of children set out in the United Nations Convention on the Rights of the Child. This year's campaign theme overlaps with the 1998 campaign, which will focus on the concerns of young people (15-24 years).

This Focus Paper is based on materials provided by UNAIDS of the World Health Organization for World AIDS Day. To obtain all of the materials that WHO has prepared (in English, Spanish, or French) and additional resources for United Methodists, including our denomination's resolutions on AIDS, visit Health and Welfare Ministries' World AIDS Day web page: http://gbgm-umc.org/programs/hiv/wad.html.


Children Living With HIV and AIDS

(adapted from UNAIDS World AIDS Day 1997 material)

From the sick and neglected infants dying of AIDS in the orphanages of Romania to the young people watching over their dying parents in East Africa, images of the children of the AIDS epidemic are among the most compelling reminders of the reach of this global crisis.

Today's children - defined by the United Nations Convention on the Rights of the Child as people under the age of 18 years old - are growing up in a world with AIDS. They must cope not only with issues and problems that have long existed and are now being revealed by the HIV/AIDS epidemic, but also with those that result directly from the epidemic.

HIV/AIDS is a disease of the young. Last year 400,000 children under the age of 15 years became infected with HIV worldwide, bringing the total number of children living with the virus at the end of 1996 to 830,000. Hundreds of thousands of HIV-infected babies are born every year to HIV-positive mothers. By the end of 1997, UNAIDS estimates that 1 million children worldwide will be living with HIV. Well over 90% of these children live in developing countries.

More children are contracting HIV than ever before. There is no sign that the infection rate is slowing. Children are vulnerable to infection through mother-to-child transmission, unsafe blood and injection practices, sex-- including sexual abuse, coercion and commercial exploitation-- and injecting drug use.

In sub-Saharan Africa, the region most severely affected by AIDS so far, the US Bureau of the Census has predicted that AIDS will offset improvements in infant and child mortality achieved in the past decade. By the year 2010, if the spread of HIV is not contained, AIDS may increase infant mortality by as much as 75% and under-five child mortality by more than 100% in those regions most affected by the disease.

Children are not only infected by HIV, they are also affected. While the number of those infected by HIV continues to grow, the epidemic is also having a direct and devastating effect on millions of other children whose lives have been permanently altered by the intrusion of HIV/AIDS into their households or communities. Children living in hard-hit communities feel the impact as they lose parents, teachers and caregivers to AIDS, as health systems are stretched beyond their limits, and as their families take in other children who have been orphaned by the epidemic.

Individual households struck by AIDS often suffer disproportionately from stigma, isolation and impoverishment. The emotional toll on the children is heavier still. As the number of children orphaned or otherwise affected by AIDS rises, social security systems, already underfunded and overburdened where they exist, are at breaking point. The impact is most acute on girls and boys already facing hardship or neglect-- children in institutional care, children in poor neighborhoods or slum areas, refugee children-- and even more so for young girls who have unequal opportunities for schooling and employment.

In countries such as Uganda, where the epidemic already took hold over a decade ago, the impact of AIDS on the socioeconomic fabric of communities is becoming increasingly visible. As one UNICEF/WHO report puts it, "the effects of the epidemic are starkly obvious from the banana plantations going fallow, the houses closed or abandoned, the funeral processions on the roads and the recent graves near homes where grand-parents care for children whose parents have died. " AIDS sets back development and changes patterns of life. To a child, this translates into a world turned upside down.

Children in the Shadow of HIV Risk

The shadow of the epidemic extends far beyond even these millions of infected and affected children. In the final analysis, all children of the world henceforth face a life-time of risk from HIV. They are exposed to the risk of HIV infection at different life stages as they grow into adulthood, because of circumstances such as sexual exploitation and abuse, or simply due to violation of their rights to information, to education and services. There must be greater recognition of the specific needs of girls and especially vulnerable children, both boys and girls, such as refugees, street kids, and children exposed to drug use.

The global epidemic continues to accelerate. We have no vaccine or no cure for HIV. For all the welcome recent advances in scientific treatments, much of the medicinal drugs may never be accessible to the vast majority of people living with HIV who are in the developing world.

HIV and Child Sexual Abuse

The epidemic casts a big shadow on the hundreds of millions of children who live in risk of HIV infection because because their personal circumstances make them especially vulnerable to sexual abuse. Sexual abuse during childhood and adolescence is a pervasive problem affecting all societies.

Sexual abuse of children takes two main forms - commercial sexual exploitation, a multi-billion dollar world industry; and sexual abuse in the home or community by relatives, "friends" or associates of the child's family, or others with easy access to the child such as schoolteachers or employers.

No one knows how many child sex workers there are in the world. Figures reported to the first World Congress Against Commercial Sexual Exploitation of Children, which took place in Stockholm in August 1996, suggested that worldwide, more than a million children enter the sex trade every year. What research has been done suggests that such exploitation is growing, and the age of the children involved is falling.

Most children in the sex industry are girls aged between 13 and 18, although there are instances of much younger children being sold. Many such children spend most of their lives on the street, often because they are escaping violence or sexual abuse at home. Other children live in brothels, having been drawn into prostitution by procurers. For example, female children are often purchased from their parents or lured to the city with promises of jobs, education or money, only to be sold to a pimp.

Girls are at greater risk than boys. Those who have been abused or forced into prostitution are often stigmatized and marginalized, which further undermines their status, and reduces their opportunities for accessing education, formal employment and, in many societies, marriage.

The HIV/AIDS epidemic has made child sexual abuse and child prostitution more dangerous than ever before. Studies indicate that rates of HIV infection among child sex workers and street children are often very high. Surveys of Kenyan girls living on the street indicated that as many as 30% were HIV-positive.

The belief that children are less likely to be infected has raised the demand for younger sex workers. The vulnerability of children to sexual exploitation may well result in their becoming infected with other sexually transmitted diseases (STDs) and increasing the child's susceptibility to HIV.

Steps are being taken at national levels to target not only commercial sexual exploitation at home but also abroad. New extraterritorial laws in some countries, including Australia, Germany, Japan, the Netherlands, Sweden, the United States and the United Kingdom, now permit countries to prosecute nationals guilty of sex offences against children overseas. The World Trade Organization recently

established a new Task Force to target tour operators and hotels that knowingly cater to sex tourists. Enforcing these new sanctions and laws will require international cooperation from a variety of actors including government entities such as the police and judicial systems. While sex tourism is a major problem, commercial sexual exploitation of children is predominantly a local issue, with both clients and agents coming from the local community.

An unknown number of children in developing and industrialized countries alike are at risk of sexual abuse by relatives, other members of the child's community or strangers. Sexual abuse in the home is also a significant factor in pushing children to leave home, thereby perpetuating a cycle of vulnerability.

A study in Zimbabwe found that most cases of child sexual abuse probably go unreported. Some are detected when the child develops a sexually transmitted disease - proof that abuse took the form of actual sexual intercourse. In 1990, 907 children under 12 were treated for a sexually transmitted disease at the Genito-Urinary Centre in Harare. Most of the offenders responsible for passing these infections to the child were either neighbors or close relatives.

Child abuse ranges from enticement to coercion. "Sugar daddies" are older men who seek out young girls (often, because they believe they are at less HIV risk from children) and entice them into sex with offers of meals, clothes, luxuries and cash, including money for school fees. The age disparity between the girls and the older and sexually experienced men, creates a particularly great HIV risk for the children. Girls employed as domestics are vulnerable to another type of abuser-- the male head of household, or his sons. Occupational exposure to sexual coercion is, of course, not restricted to household employees, but live-in domestics run a greater risk because they are accessible around the clock.

Sanctions and laws are only a first step in stopping child sexual abuse. In the shorter term, they may raise awareness of this terrible affliction. Increased attention will in turn help change the culture of silence surrounding abuse and make societies more sensitive to abused and exploited children. But while laws forbidding sexual exploitation of children exist in nearly every nation on earth, they are notoriously hard to enforce.

HIV and Consensual Sex with Peers

Children are not only at risk of HIV infection when they are sexually exploited or abused, but also when they engage in consenting sex. Many children have their first sexual relationships when they are under the age of 18. A major source of

vulnerability is their lack of knowledge about HIV transmission and their lack of skills in recognizing situations that may turn risky, such as alcohol consumption, standing up to pressure for sex (and drugs), and negotiating condom use and other forms of safer sex.

Love and trust also make children vulnerable. The rate of partner turnover is often greater during adolescence and the early twenties than in later years. This applies not only to casual partners but to regular relationships which occur one after the other. Although these relationships may not last long, in the minds of young people they are often considered to be "safe" in terms of HIV transmission because they are "monogamous." Thus intercourse without a condom occurs with a series of partners. Unwanted pregnancies and high rates of STDs among young people show that the consequences can be severe and even lethal.

HIV and Drug Use

The injection of illicit drugs, always a risky behavior, now carries an additional danger-- HIV infection. Drugs do not have to be injected to carry an HIV risk. Alcohol, smoking drugs or glue-sniffing make people forgetful or careless about safer sex or abstaining from sex. While some adolescents inject drugs, many more engage in non-injecting use of substances that can increase their vulnerability to HIV infection.

Many factors influence drug use. However, the association between drug use and HIV infection appears to be particularly dangerous for females involved in commercial sex and for both girls and boys on the street. The environmental factors involved include poverty, discrimination and lack of access to education and health services. "When surveyed, young people in developed or developing countries often indicate that boredom, curiosity and wanting to feel good are perceived as the main reasons for use. Other functions served by substance abuse are to relieve hunger, to adopt a rebellious stance, to acquire courage to beg or be involved in commercial sex, to keep awake or get to sleep, and to dream," says a WHO report.

Children in difficult circumstances are more liable to maintain and escalate substance abuse. For girls living or working on the street, the risks are particularly great as they often have to cope with violence, HIV and other STDs, unplanned pregnancies and unsafe abortions. If they carry their pregnancies to term, they are often left to their own devices to support themselves and provide for their children.

Refugee and Displaced Children

As civil conflict, political persecution, and natural disasters plague many countries, millions of people are forced to live outside of their countries of origin. The majority of the world's refugees are children and women. In conditions ranging from large rural encampments with limited infrastructure to intensely crowded urban shanty towns, young refugees are vulnerable to nonconsensual sex. Even if there is consent, availability of condoms is often quite limited.

The same is true for many displaced children living within the borders of their country, but not in their homes. They survive in very unstable, often threatening environments where risks are high and rights are rarely protected.

To make matters worse, refugee and displaced children are known to be targeted for rape and sexual abuse by adult tormentors from within their own communities, and from external exploiters taking advantage of these environments in which children's rights are often violated.

Children in Detention and HIV

Similar to the saga of their adult counterparts in prisons, children who are in detention are often exposed to violence, abuse, and unwanted sex. Drug abuse is also a compounding factor for HIV transmission, along with the prohibition of condoms, and body piercing, and unsanitary/unsafe tattooing. Young people in reformatories and other such facilities often have few, if any, options for preventing HIV and other sexually transmitted diseases. Without radical reform in juvenile justice and social welfare institutions, these children will remain with their rights violated-- and their risks increased.

Children with HIV/AIDS in Developing Countries

HIV infection in children runs a faster course to AIDS and death than in adults. Pediatric AIDS kills especially fast in developing countries. Sick children in developing countries are generally at greater risk of death than children in industrialized countries; this is no less true of children with HIV. In Europe, 80% of HIV-infected children survive until their third birthday; more than 20% reach the age of 10. In Zambia, however, nearly half of HIV-infected children in one study had died by the age of two. In another study in Uganda, 66% were dead by the age of three.

In Africa, the situation for sick HIV-positive children is very grave. Many of the common, inexpensive antibiotics and other medications used to treat sick children without HIV also work for children with HIV-- but often, even these drugs are unavailable. Poor families are less able to afford health care and basic drugs, a problem which is even more acute in countries with low health budgets and where health services are difficult to access. However, the more rapid course of pediatric AIDS in Africa is explained not only by less developed health care systems but also by poor nutrition and widespread infectious diseases to which children are particularly vulnerable.

Poverty is a key reason why children die more quickly of AIDS in developing countries. If children are sleeping three or four to a room, for example, they are far more likely to transmit and contract tuberculosis or other respiratory diseases if one of them has any of these infections. If children are poorly nourished, their immune systems will weaken. If families do not have access to clean water, they are more vulnerable to waterborne diseases including diarrhea.

Children with HIV often experience wasting and delayed development. They are often killed by typical childhood diseases like diarrhea, measles, tuberculosis and other respiratory infections. Because these diseases are often the same as those that kill other children, it is sometimes difficult for health workers in poor countries, without access to expensive HIV testing equipment, to distinguish HIV-positive children from others. In communities around the world, increases in infant and child deaths due to AIDS may lead to a mistaken belief that immunization and nutrition programs for children do not work. Disenchantment with these programs could increase mortality in uninfected children.

In poorer countries some babies are still being infected through contaminated blood or medical equipment, but most HIV-infected infants have acquired the virus from their HIV-positive mothers during pregnancy, delivery, or breast-feeding. While not all children born to HIV-positive mothers become infected, this risk is greater in poorer countries. Most studies suggest that the probability that an HIV-positive woman's baby will have the virus is between 25% and 44% in a developing country, between 13% and 25% in an industrialized country.

While breast-feeding can kill by transmitting HIV, bottle-feeding can also be dangerous and increases risks to child health. In recent years, breast-feeding has been heavily promoted and encouraged for good reason. It affords vital protection against deadly childhood diseases, particularly diarrhea and respiratory infections. Breast-feeding is a natural, cost-free method; whereas the cost of infant formula and even the clean water and fuel needed to prepare it, are often beyond the means of poor families in developing countries.

The HIV-positive mothers of newborns thus face a difficult dilemma in choosing between breast-feeding and bottle-feeding. The context will differ depending on the country and the woman's own socioeconomic status.

Strengthening Development to Strengthen Coping

The socioeconomic costs of AIDS are affecting the ability of developing economies to sustain their development gains. Other diseases have profound effects on the survival and well-being of children. A distinctive feature of AIDS is that it affects a tremendous number of young people who are also parents-- adults in their most sexually active and most productive years.

In the worst-hit areas, resources become increasingly stretched as AIDS mortality increases the burden of income-generation and child care and places it on the shoulders of fewer and less able-bodied adults. AIDS stigma can affect the willingness of communities and extended families to care and support those who are most affected. Society's coping capacity is further adversely affected by the fact that the effects of HIV manifest themselves over periods of years and that AIDS deaths tend to be clustered within families. Very often, more than one parent and more than one child in a particular household are infected.

However, it is still difficult to make reliable estimates of the impact of AIDS on economies, because AIDS impacts differently on different socioeconomic systems and on different sectors in the same economy. For example, the loss of a single income earner may have a different impact in rural and urban areas due to the types of family structures. In urban areas, the loss of a single wage earner can affect a large group of extended family members. Labor-intensive farming systems are also more vulnerable to the loss of able-bodied adults than others.

Wherever possible, resources should be directed to enabling families and communities to establish and maintain a sufficient economic base to provide for children's needs. Children themselves need to have their educational and employment opportunities bolstered if they are to break out of the pernicious cycle of poverty and AIDS.

Education and empowerment combined with the promotion of children's rights are believed to be key to HIV/AIDS prevention by leading agencies such as

UNICEF and UNESCO. However, much of this needs to be directed not only to the youngsters themselves but to their families-- the most important social support for children.

Reducing children's vulnerability to HIV means improving the economic situation of their families. Reducing children's vulnerability also means keeping the various communities' HIV risks constantly in mind when, for example, targeting development assistance. In other words, development not only strengthens society's ability to cope with the impact of HIV/AIDS. Development strengthens society's ability to withstand HIV transmission.

School Education on HIV/AIDS

AIDS education and education concerning sexual health in schools is an issue fraught with controversy. Some fear that such education will encourage early sex. UNAIDS recently commissioned an update of an earlier WHO review of studies-- mostly in the USA and Europe-- on the effect of sexual health education. The aim was to assess the impact of sexual health education on the behavior of students in terms of rates of teenage pregnancy, abortion, birth, sexually transmitted diseases, and self-reported sexual activity.

The review showed that responsible and safe behavior can be learned. Education on sexuality and/or HIV does not encourage increased sexual activity. Quality programs help delay first intercourse and protect sexually active young people from sexually transmitted diseases, including HIV, and from pregnancy. Among other things, quality programs feature a clear explanation of the risks of unprotected sex and methods-- including abstinence-- for avoiding them, and help young people practice communication and negotiation skills.

Sexual health education is best started before the onset of sexual activity. Issues such as the increasing evidence of sexual abuse have persuaded some teachers and AIDS workers that some form of "life-skills" education at primary school is necessary. AIDS workers in developing countries, where secondary school enrollment is much lower than primary, believe such education is particularly important, especially for girls. In many countries, the majority of children have left school by the age of 15.

Reaching children quickly enough, many of whom are poor, unable to read and write and are among the most vulnerable to HIV infection, is the highest AIDS prevention priority. According to one AIDS worker in Zimbabwe, "we start in

schools from about 8 years or 9 years old. It sounds too early but in our country there is a lot of child sex abuse, even rape, which makes it very important for us to introduce the subject during that period or even earlier.

Injecting Drug Use and HIV prevention

As with the prevention of sexual transmission, HIV prevention related to drug use must encompass far more than giving information. Education must emphasize learning skills for negotiation, building self-confidence, making the right decisions and resisting peer pressure. A key need is to integrate sexual health education and drug education, not conduct them separately, because they are both intertwined in HIV transmission.

Measures must be designed and carried out in a way that helps build a supportive environment for these children. HIV prevention means helping the children acquire the skills they need to negotiate safer sex, resist peer pressure for sex and drug use, and establish personal support networks. Counseling is important because it helps children mature and make sound decisions.

In short, preventing the HIV risk associated with drug use calls for programs targeted at the drug users themselves, their sex partners and family members, health care workers and the general community. It also requires advocacy to raise the consciousness of adults not to lure children into drug use.

Involving Children

If children really do offer a "window of hope" for influencing the future course of the AIDS epidemic, understanding their needs and perceptions will be critical.

At an international conference on AIDS in Marrakech in 1995, a "delegation" of young Africans from 11 countries ranging in age from 14 to 24 issued a declaration of their needs and priorities: "We strongly believe that our energy, idealism and commitment can be used to stop the further spread of the AIDS epidemic that is devastating the social and economic fabric of our countries."

Creative ways can be found of "amplifying" the voice of children. In Thailand, for example, a Children's Forum has been created in parliament, while a "media page" in newspapers and magazines captures children's voice and channels their experience to the adult world. At the same time, we must recognize that children are not in this world alone. Parents, school teachers, religious and community

leaders must also be involved in developing programs for children if they are to be accepted by the community and help build a safe and supportive environment. Securing their involvement requires ensuring that they hear the concerns and aspirations of children.

AIDS is the most publicized disease in the world, but its impact on children has received an inadequate response. Adults can and must do their part to ease the suffering of children infected with HIV, help children in AIDS-affected homes and communities, and enable all children living in the shadow of HIV risk to grow up uninfected.

Excerpted from the UNAIDS web site: Children Living in a World with AIDS


Next Section: Annotated Bibliography and Worship Resources

HIV/AIDS Ministries Network Focus Papers are a publication of the Health and Welfare Ministries , General Board of Global Ministries, The United Methodist Church, Room 330, 475 Riverside Drive, New York, NY 10115. Phone: 212-870-3909. FAX: 212-749-2641. E-MAIL: aidsmin@gbgm-umc.org. WEB: http://gbgm-umc.org/programs/hiv/covenant.stm. Focus Papers, unless otherwise noted, may be quoted, reproduced and distributed with credit being given to Health and Welfare Ministries and the authors.